StudyWeb

Marsha, Cristy and Steve first met as a team on April 1st, 2000 (yes - April Fools Day) to discuss ways of providing help to caregivers, families, and patients with Huntington's Disease (pHDs). Our goal is to find answers for the numerous questions that pHDs and those who give care to pHDs face. Our tool is the Huntington's Disease Advocacy Center (HDAC) Web site.

We discuss it's effect on those who've inherited the disease, and to try to supplement the information that your neurologist, physician, or psychiatrist provides to you regarding HD. We also provide a forum for those who have offered to share their experiences regarding issues that simply don't have "answers" but rather options to be considered such as feeding tubes, nursing home placement and the like.

There have been many contributors of stories and informative articles to the site and their and credits are found therein. We are:

Marsha Miller, Ph.D. Founding Member Contributing Editor

Steve Ireland Founding Member Site Design and Construction

Cristy Wolf Founding Member Join her in her fight for patients rights at http://www.kaiserpapershawaii.org.

Special thanks need to go to "Link Lady" Jean Miller for her tireless dedication in searching the Web for fragments of truth about HD and caregiving and so freely sharing them with others. Her efforts have been priceless. Thanks Jean.

The software for the Message Board is an open-source project available from the Phorum web site.

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The site is database driven using VVM as our host, PHP as the scripting language and MySQL as the database.