Rooms
HDAC Home Page
Message Board
Beacon of Hope
Kitchen
HD Library
F.A.Q.
HD Family Web Sites
HD Organization Sites
Basement Stuff
About Us
Site Guide

 
HDAC Family Stories
HD Families in the News
HD Family Stories
"14 Changes That Could Signal Concern" by Phil Hardt
"A Caregiver's Self Talk" by Maggie
"A Letter to the President" by Regina L. Silver-Koplo
"A Life Decision" by Ken Pidcock
"A Long Time Ago" by Tim and Karen
"A Matter of Perception" by Kelly B.
"A Ministry of One" by Carmen Leal
"A Perspective for Treating HD Today" by Jim Thretheway
"A Review of Walking the Tightrope: Living At-Risk for Huntington’s Disease" by Jennifer Tate
"A Special Gift: The Rose" by Barb Marshall
"A Spiritual Connection" by Jim Keating
"A Tribute to My Parents" by Debbie Hart
"A Tribute to Peggy Pappas Chakeres" by Stella Chakeres Brockner
"An Overview of Testing for Huntington's Disease" by Marsha Miller, Ph.D.
"And Yet He Stays" by Vicky Pratt
"Another 5 Minutes" by Loretta Church
"Another Tetrabenazine Study" by Joseph Jankovic, M.D.
"Anxiety and Panic Attacks" by Kelly B.
"Anxiety and Panic Attacks, Part Two" by Kelly B.
"Asking for Help" by Kelly B.
"Bill at the Polls" by Ruth Hargrave
"Body Memories" by Kelly B.
"CAG repeats and energy metabolism" by Seong, Ivanova, Lee, Choo, Fossale, Anderson, Gusella, Laramie, Myers RH, Lesort M, Macdonald ME
"Camp Squamish 2004" by Kelly. B.
"Cancer?! – But I’m At-Risk!" by Jill Ginsberg
"Care to Share? The wonderful world of Wiki's!" by Steve Ireland
"CHDI, Inc. Update" by LaVonne Veatch Goodman, M.D.
"Coastin' for HD" by
"Confronting Fate" by Kelly B.
"Coping with Loss as a Caregiver" by Marsha L. Miller
"David’s Gift" by Renee Underwood
"de Redfish and Susie" by Delbert T. Jeter (de Redfish)
"Death and Dying" by Kelly B.
"Deciding to Continue Testing for HD" by Andrea H.
"Denial" by Kelly B.
"Depression" by Kelly B.
"Educational Seminar: Caregiving in Hungtington's Disease, Toledo, OH" by Robin
"EHDN and World HD Congress" by Gordon Robertson
"Emotions" by Kelly B.
"Enjoy Volunteering" by Phil Hardt
"Faith" by Kelly B.
"Family" by Kelly B.
"Family and Friends" by Marsha L. Miller, Ph.D.
"Farewell to an HD Warrior ... Jerry Lampson, Lighthouse Keeper" by Marsha Miller, Ph.D.
"Fear of Being a Burden" by Kelly B.
"Feeding Tubes" by Jean Miller
"Finding Support" by Kelly B.
"First Annual Huntington’s Outreach Project for Education at Stanford (HOPES) Conference" by Marsha and Steve
"From the Frontlines : Survival Strategies" by Amy Chesire, CSW-R, MSG
"Gudrun’s Caregiving Tips: Recreation for Phds in the late stages" by Gudrun
"HD + Instructor Finds that Yoga can Relieve Symptoms" by David Brensilver
"HD and Aquatics for Movement Disorders" by Patricia Ann Morgan Candlish BA MLS
"HD Jails in Juan de Acosta, Colombia - A Tale of Two Families" by Phil Hardt
"HD Testing - my story" by Joan E.
"HD Trek Across Texas" by Marie Nemec
"HD, eHarmony, and Me" by Phil Hardt
"HD, Marriages and Relationships" by Phil Hardt
"HDSA 2001 Annual Convention" by Lynn and Steve
"He's Not Heavy, He's My Brother." by Shirley Procell
"Help for Huntington's" by Ann Depperschmidt
"Here she comes... Miss America!" by Jim Pollard
"Hope Springs Eternal" by Heather Dugdale
"How to Have Hope Today, Even If You’re At-Risk for HD!" by Phil Hardt
"Huntington's Disease ~ A Metamorphosis of Life" by Ardith Newbold
"Huntington’s Disease Memorial Quilt" by Hunt-Dis List Members
"I don't want a cure! " by Phil Hardt
"I Hate this Disease, but I Love Him" by Marg
"Inhibiting the HD protein aggregates" by Zhang, Smith, Meriin, Engemann, Russel, Roark, Washington, Maxwell, Marsh, Thompson, Wanker, Young
"Insights into Huntington's" by Kelly B.
"It’s a Wonderfully Different Life" by Carlos A. Urrutia
"Juvenile Huntington's Weekend September 2007" by Gordon Robertson
"Letter to Congress" by Margaret Pond
"Life" by Kelly B.
"Life After Testing" by Kelly B.
"Life After Testing Positive" by Gerry
"Life's Regrets" by Kelly B.
"Living in the Gray Area" by Paula
"Living Large" by Kelly B.
"Living life to the fullest" by Gordon Robertson
"Living Positively with Huntington’s Disease" by Phil Hardt
"Long Journey Home" by Gordon Robertson
"Making Better Decisions Now" by Phil Hardt
"Managing Medications from a Caregiver's Perspective" by Dave Kendall
"Miracles" by Kelly B.
"Mitochondrial impairment" by Saft, Zange, Andrich, Muller, Lindenberg, Landwehrmeyer, Vorgerd, Kraus, Przuntek, Schols
"Mom, I have Huntington Disease; I am sure." by Maggie
"My experiences with Huntington's Disease" by John Charlton
"My First Christmas in Heaven" by Julie Sando Teuber
"My Friend, My Hero, My Lorna" by Kelly B.
"New Virginia Chapter of HDSA is Underway" by Tim O'Neil
"Odds and Ends" by Kelly B.
"Open Letter to my Friend" by Julie Sando
"Organic Denial" by Kelly B.
"Participating in the PREDICT-HD Study" by Will Brown
"Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 1" by Phil Hardt
"Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 2" by Phil Hardt
"Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 3" by Phil Hardt
"Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 4" by Phil Hardt
"Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 5" by Phil Hardt
"Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 6" by Phil Hardt
"Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 7" by Phil Hardt
"Pharmaceutical companies to invest in HDAC inhibitor research." by MethylGene, Inc Press Release
"pHD Shot by Deputies During Effort to Get Mental Health Assistance" by Robert Barron
"Phil Hardt on Social Security Revised" by Phil Hardt
"Please tell me how to cope!" by Jean Miller
"Positive Living with Huntington's Disease" by Ardith Newbold
"Positive Living with Huntington's Disease" by Phil Hardt
"Possible New Vector for RNAi Therapy" by Chen ZJ, Kren BT, Wong PY, Low WC, Steer CJ.
"Preparing to go out on Disability Retirement" by Phil Hardt
"Progression" by Kelly B.
"Promises" by Kelly B.
"Public Drunkeness" by Kelly B.
"Ray’s Story: From One At Risk" by Ray
"Recommended Books and Movies for HD Families" by J. Appleseed
"Relocating" by Kelly B.
"Remembering Jerry" by fellow HD warriors
"Rikki's story" by Myrna
"Running from The Devil" by Will Brown
"Self-Advocacy, Part Two: Documenting Disability" by Marsha L. Miller, Ph.D.
"Sharing a Disease" by Deborah Baker
"Standards for HD Family Care" by Phil Hardt
"Stark White Walls" by Lisa Reid
"Still the Same" by Kelly B.
"Story of a Caregiver" by Vicky Pratt
"Stress" by Kelly B.
"Sub Cortical Front Dementia in Huntington's Disease" by Phil Hardt
"Swimming against the Tide" by Gordon Robertson
"Talking to Children" by Kelly B.
"Testing my two children for JHD" by Amy D.
"Testing negative and remaining positive" by Michelle
"Testing Positive for Huntington's Disease" by Kelly B.
"Testing Positive: Planting a Lemon Tree" by Lauren
"Testing, my own personal roller coaster ride from ....." by DCB
"Texas Gathering" by Steve Ireland
"The Caregiving Experience" by Susie
"The HD No One Sees" by Kelly B.
"The Last Generation" by Carmen Leal
"The Many Challenges of HD" by Kelly B.
"The Secretary’s Advisory Committee on Genetics, Health, and Society Hearing on Genetic Discrimination" by Phil Hardt
"The Test" by Suzanne Kengla
"There Once Was a Man" by Allison Chambers Coxsey
"To Live 'As If' - My Story
Chapter VII: I'm Okay, You're Not" by T.C.
"To Live 'As If' - My Story
Chapter VIII:The Long and Winding Road Comes to an End" by T.C.
"To Live 'As If' - My Story
Chapter 1" by T.C.
"To Live 'As If' - My Story
Chapter II: Head on Collision with the Truth" by T.C.
"To Live 'As If' - My Story
Chapter III: Home is where the Heart Breaks" by TC
"To Live 'As If' - My Story
Chapter IV: A New Arrival Very At Risk" by T.C.
"To Live 'As If' - My Story
Chapter V: The First Year is the Hardest" by T.C.
"To Live 'As If' - My Story
Chapter VI:The Second Year Fear Factors" by T.C.
"Trudy's Story" by Miranda Adkins
"Using Your Words" by Kelly B.
"Video Documentary: Pierre's Story" by Rob Hopping
"Wanting What Once Was" by Donna
"When the Running Stops" by Julie Sando
"Zero Suicide Campain" by Phil Hardt
The information provided through HDAC is not a substitute for professional care. Please see our disclaimer.
Prepared for Huntington Disease Advocacy Center, Copyright © 2004.