Following the instructions on this page carefully and you can print a customized identification card for a Phd. The form is shown on the right. There are a few simple steps to follow:

  1. Update the "card" with the name and phone numbers of the person to be contacted in an emergency. (Enter the information in the form below and press ENTER or click on the "Update Card" button.
  2. Print this page
  3. Cut out the "card" around the edge
  4. Fold it in the middle.
  5. Place it between two sheets of plastic laminate
Presto, you have an information card for emergency medical professionals or police. This will easily fit in either a wallet or a purse.
    Important Notes:
  • Personalizing the card only works if you use Internet Explorer as your browser.
  • In Internet Explorer the card will be credit card size. In Netscape the card is a little large but can still fit in a wallet.
  • The text may not be legible on your screen but if you print it on a laser printer it will be more than adequate.

Contact Name:
Contact Day Phone:
Alternate Phone:
 

Thanks to the late Lou Wilkinson of Calgary, Alberta, Canada for the text of the card. We miss you Lou!

However, one of the problems is that the Phd may not remember that they have an id card to show to an official. In fact they may get downright violent if someone tries to check their pockets. However, keep in mind that if the Phd becomes violent the officer will take the Phd down and check the wallet. The card should be right next to the driver's license - preferably in front.

If the Phd is pulled over on suspicion of drunk driving it might at least keep him or her out of jail (which is a pretty darn good reason to use these cards).


Medic Alert

As an alternative, several caretakers suggest a Medic Alert bracelet. This seems to be the the thing to do if you're concerned that the Phd wouldn't voluntarily present a card. You might even want to consider doing both.

I HAVE HUNTINGTON'S DISEASE

CONTACT: _____________________
DAY PHONE: ____________________
ALTERNATE: ___________________
Huntington's Disease (also known as Huntington's Chorea) is an inherited brain disease, which causes uncontrollable movements, abnormal gait, slurred speech, mental deterioration and marked personality changes. There are 3 main areas that are affected by Huntington's Disease:

EMOTIONAL AND COGNITIVE
Patients with Huntington's Disease (Phd) exhibit depression, mood swings, inappropriate behavior; may become dependent, incommunicative, anti-social, obsessive, impatient, aggressive, abusive; and may have trouble sleeping, organizing or remembering things. Many have trouble remembering dates or appointments, and short term memory recall. They are distracted by noise, have an inability to learn new skills, sequences or retain numbers - decrease in mult-tasking abilities. Inability to access information in the brain, unable to form ideas and words easily, reluctant to initiate actions or conversations or answer questions; can't remember what has been asked a moment before. Intellect is not affected, only access to the information!
(continued from other side)

PHYSICAL
At the beginning, the changes are subtle: they appear to be fidgety or restless, finding it difficult to sit still and concentrate. They may wave their hands around when they speak or their feet may shuffle and tap. They seem to be in constant motion even when they are supposed to be relaxed. They will be clumsier and more awkward with movements, often running into things, knocking items over or dropping things. This is a sign of an incomplete brain thought where the command is sent to pick up something and received but not completed and the item is dropped. Their ability to judge their bodies' perimeter becomes inaccurate resulting in banging knees, shoulders, elbows and heads. The appearance of being drunk may become evident as body movement becomes uncontrolled. Unlike Alzheimer's Disease where the memories are completely gone, Phds retain the knowledge but just cannot get to it. Even if the memory is accessible, the brain's ability to completely process an action decreases. They are still aware of their surroundings and able to understand conversation and physical touch.

Thank you for your help and understanding.


Prepared for Huntington Disease Advocacy Center, Copyright © 2000.