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Early Pre-Huntington's Symptoms? by Kelly B. on 05-05-2010 is Published for HD Family Life
The question of when “onset” occurs has always been a hard one to answer. People in HD families have known for many years that their loved ones' deterioration with HD occurred years before the doctors would or could diagnose it. Our HD does not become real to the medical world until the day we are diagnosed as symptomatic.
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Family by Kelly B. on 01-01-2010 is Published for HD Family Life
Huntington’s Disease is a whole family affair. There are many sad stories, but there are just as many people out there who are fighting their own HD dragon with a bravery that makes their family and friends proud.
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Sub Cortical Front Dementia in Huntington's Disease by Phil Hardt on 11-01-2009 is Published for HD Family Life
There is a very pressing need to frankly discuss one of the most debilitating symptoms in the neuropsychiatric sequelae of “softer” symptoms in Huntington’s Disease- sub-cortical “frontal” dementia.
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Managing Medications from a Caregiver's Perspective by Dave Kendall on 09-20-2009 is Published for HD Family Life
Medications are one of the most difficult issues facing Huntington’s Disease (HD) caregivers and patients
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Using Your Words by Kelly B. on 09-19-2009 is Published for HD Family Life
Learning how to use your words can take a lifetime to learn. It is an art that takes a lot of practice, and it all begins with the realization that the people around us are NOT mind readers.
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Persons with Huntington's Disease Jailed in Juan De Costa, Colombia, South America, Part 1 by Phil Hardt on 08-29-2009 is Published for HD Family Life
Three hugely successful humanitarian trips reveal that the suffering of individuals with Huntington’s Disease (HD) exacerbated because of lack of knowledge, extreme poverty and widespread corruption in Colombia.
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A Matter of Perception by Kelly B. on 07-19-2009 is Published for HD Family Life
We have all heard the saying that life is what you make it but many people do not realize that the way they perceive things plays a major role.
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Relocating by Kelly B. on 05-30-2009 is Published for HD Family Life
There comes a time for many of us when we have to leave our homes and neighborhoods in order to seek out better medical care as our HD progresses.
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A Special Gift: The Rose by Barb Marshall on 04-28-2009 is Published for HD Family Life
On my 50th birthday, I decided I wanted to use this time that I've been given back to do something big, something really important to me.
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Confronting Fate by Kelly B. on 02-22-2009 is Published for HD Family Life
When I was a child I was told HD was something I would never have to worry about. My real father did not have it so I could not get it. Reality hit in the fall of 1996 when my father tested positive on his first neurological exam.
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A Long Time Ago by Tim and Karen on 02-03-2009 is Published for HD Family Life
We wanted to know so we could plan our life together accordingly.
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Faith by Kelly B. on 12-15-2008 is Published for HD Family Life
One of the lessons that I have learned in this life time is that a little bit of faith can go a long way.
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My First Christmas in Heaven by Julie Sando Teuber on 12-15-2008 is Published for HD Family Life
I wrote something on Christmas of 2000 after a relative passed away. It kind of dawned on me as I was missing her that she was having her first REAL CHRISTMAS in heaven. I wrote this as I imagined how it might be.
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My Friend, My Hero, My Lorna by Kelly B. on 11-07-2008 is Published for HD Family Life
This tribute to my best friend Lorna is way overdue.
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Stress by Kelly B. on 09-12-2008 is Published for HD Family Life
Huntington's families carry their own unique brand of stress.
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Living Large by Kelly B. on 05-21-2008 is Published for HD Family Life
If we are going to live, we may as well live large.
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Self-Advocacy, Part Two: Documenting Disability by Marsha L. Miller, Ph.D. on 05-19-2008 is Published for HD Family Life
Documenting a disability like Huntington’s Disease can be difficult because there are a multiplicity of problems that combine to prevent an individual from working.
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Talking to Children by Kelly B. on 04-23-2008 is Published for HD Family Life
Talking to children about Huntington's Disease is a very difficult thing to do. Trying to put Huntington's into words that adults can understand is hard enough but when you have to explain it to children it is heartbreaking because the stakes are so much higher.
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Asking for Help by Kelly B. on 03-03-2008 is Published for HD Family Life
Life is a struggle for many people. That is the tie that binds all of us together because we are all up against something. If you are feeling down or isolated then reach out to someone in your corner of the world. The support and understanding you need is there for the asking.
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Miracles by Kelly B. on 12-17-2007 is Published for HD Family Life
It seems only fitting with Christmas only a couple of weeks away that I write this piece on miracles. Miracles come in all shapes and sizes, from the smaller ones that happen unnoticed all around us every day to the most profound ones that have a ripple-effect in our lives.
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