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General information about HD.

• What is Huntington's Disease?
• What causes HD?
• What are the symptoms and stages of HD?
• How do we talk to the children about HD
• There was no known history of HD in our family. How do we tell other family members?

Living At-Risk.

• How do I cope with the uncertainty about myself and my children?
• What do I do about dating and marriage?
• What does a young person need to know about being at-risk?
• Who do I tell?

Pre-implantation Genetic Testing

• Predictive testing: method, options and issues.

Finding help.

• How do I find a doctor who is knowledgeable about HD?
• How do I find a support group?
• There is no support group in my area. How do I start one?
• What about Advance Directives?
• What should I expect from my doctor and what will my doctor expect from me?
• Where can I find a Treatment Center?

Managing the Specific Symptoms of HD

• Can physical therapy and speech therapy help?
• Does lifestyle affect the condition of a person with HD?
• How can we inspire an unmotivated Phd?
• How can weight loss be slowed?
• How do I handle incontinence?
• Is there any way to enhance multi-tasking skills?
• The doctor is recommending feeding tubes. What do I need to know about feeding tubes?
• What about counseling?
• What are some effective methods to calm an aggressive or violent Phd?
• What are the different behavior problems that can accompany HD and how can the person with HD and family members cope?
• What are the possible sexual problems caused by HD, and what can be done about them?
• What can be done if personal hygiene becomes an issue?
• What can be done to enhance cognition?
• When should chorea be treated?
• Where can I find more information about HD medication?
• Which foods and food preparation techniques can make swallowing easier?
• Which foods should be avoided by Phds?
• Which medications have been prescribed for various HD symptoms?
• Which methods and tools can improve communication skills?
• Which nutritional supplements have been recommended for Phd's?
• Why does HD cause eating and swallowing problems and what can I do about it?
• Why is good dental care so important?

Behavioral Problems Caused by HD

• How can I cope with late-stage caregiving?
• How do I provide a safe and comfortable living environment for Phds?
• When and how should we decide when driving should no longer be allowed?
• Where can I find out about Juvenile HD?

Caregiver Issues

• How do I know when I need help and where do I turn?
• How will this affect my employment?
• Making the tough decisions.
• Reproduction - What options are available and where?
• What about me? Wellness and coping?

Finances

• How do I obtain financing for long term care?
• Preparing for disability
• What disability options are available in the US (state and federal programs), and other countries?
• What's the scoop on applying for Social Security Disability?

Nursing Home Information

• How do I find a good nursing home?
• How do I handle a problem with the nursing home?
• How will I know when it's time for a nursing home?
• What are the issues pertaining to HD patient care?

Fundraising/Advocacy

• How can I make a difference?

Research

• Disclaimer
• Have there been any exciting breakthroughs recently?
• What studies and clinical trials are now in progress, and how do I contact them?
• Where is HD research headed?