Welcome to our new Juvenile HD portal. This year the HD Community is shining a spotlight on the special challenges of families who
are coping with children who have developed Juvenile Huntington's Disease. We are joining in that effort.
Although there are not a lot of research studies focusing just on JHD we've identified a few and they
can be found on the HDlighthouse.org Web site at http://www.hdlighthouse.org/abouthd/juvenile/.
Often the most important need is to talk to someone. On HDAC we have a regularly scheduled chat hosted by Gordon who is a JHD family member.
The chat is scheduled for every Tuesday at 4:00 PM EST. Click here to go directly to the chat room. (JHD Family)
Stanford University HOPES site is a good place to visit to learn more about Juvenile Huntinginton's Disease.
Click here to go to the JHD Section of HOPES
With your help, by the end of this year we should have up-to-date references to resources of particular interest to JHD families.
If you have any resources that you can recommend please send an email to me at stevei@hdac.org.
Other links that you will find helpful:
